Cystic Fibrosis (CF) is the most common, recessive genetically acquired, life-shortening chronic illness affecting young Australians today.
It primarily affects the lungs and the digestive system, however, it also affects a number of other organs and systems.
Complications increase with age, requiring ever increasing levels of (self) care and support. There is currently no cure. From birth, a person with CF undergoes constant medical treatments and physiotherapy. Lung failure is the major cause of death for someone with CF.
On average one in 25 people carry the CF gene (most of whom are unaware they are carriers).
CYSTIC FIBROSIS VICTORIA
Cystic Fibrosis Victoria (CFV) is the peak community not-for-profit organisation working with and for people with CF right across the state. Its mission is to assist everyone affected by CF to be well and live fuller lives. It provides information, support and guidance to people living with CF and their families. It advocates for services and systems that support the CF community and seeks to raise awareness, understanding and funds for services and research. Over 80% of CFV income is from fundraising.